...Now, can they
get us to walk the walk?
I have to admit
that I was quite impressed by a recent announcement by the Rick Hansen
Institute. Their new five year "strategic directions" plans seems
just like what spinal cord injury cure activists have been campaigning for.
For now, I'll
leave my judgement at "seems", but they sure have learned to talk the
cure talk. Prior to this the Rick Hansen Foundation and Institute has sprinkled
the "cure" word here and there but never seemed to have any kind of
plan to cure spinal cord injury. It seems that this may have changed!
Not only do they
seem committed to a cure for spinal cord injury, it looks like they also have a
plan which entails spending for cure (along with care). They now talk about
regeneration and even mention the word "chronic" spinal cord injury.
"Chronic" means those of us currently living with the horrors of
paralysis and they NOW talk about US.
I can't be 100%
certain, but I don't believe that their old website ever talked about a
commitment to cure chronic spinal cord injury. They've even set up a committee
headed by Dr. Brian Kwon to deal with cure.
Another new
buzzword(s) is "consumer engagement". Could this mean that RHI now
wants our input?
We've spent two
years asking the Rick Hansen Foundation and Institute questions about cure and
now they seem like they're ready to answer.
I know that there
are many cynics when it comes to the Rick Hansen group and cure, but I prefer
to let my cynicism down and engage this new path with questions. You can see
some of the questions we'll be raising in upcoming talks.
Let's see what one
of the leading, world wide, SCI organisation is putting on the cure table
before criticising. One of my "cure" comrades stated that they are
doing all of this just to make us happy. My answer to this is that I'm glad
they're finally considering our opinions, trying to "make us happy", and making cure a true centerpiece in their
efforts.