Apparently, it should have been called 'A Cure for SCI will BE announced by the Christopher and Dana Reeve Foundation (CDRF) on my blackberry'.
Just a few minutes ago I received an email from CDRF telling me that they are now, "Succesfully getting people out of their wheelchairs right now. Today, it really is a reality."
Right after that the little red blackberry light lit up with emails from my blog followers. There were two groups. One that wrote to tell me how great this is, and the second group who were pissed off that CDRF could even state something like this.
Yesterday I was crippled and 'right now' I can get out of my wheelchair. What a load of crap aimed entirely at fundraising.
First they get Christopher Reeve's kids to state that CDRF's NeuroRecoveryNetwork (NRN) using epidural stimulation is the thing that Mr. Reeve would have been most proud of and then they link it to "getting people out of wheelchairs".
Most importantly, the NRN is not getting people out of their wheelchairs with all the implications this means; secondly, how do we know what a dead man thinks?
Of all the hype, false hope, and unabashed fundraising, this one takes the cake. Not only will people be fooled by this false announcement, they will feel let down when they realise that it's not true. This is the worst disservice of all.
I know what they'll say to spin it. They're going to say that it ONLY means people standing up, from time to time, on their own. And that it means people may be stepping, but this is NOT 'getting people out of their wheelchairs'. The vast majority will take this statement to mean CURE - permanently out of their wheelchairs. Why? Because the biggest SCI injury foundation on earth has declared it.
This false hope to raise donations, and using Christopher Reeve's kids to do it, is the worst display at a money grab that I've ever seen in the CURE communuity.
I won't argue with them about the benefit of NRN on the paralysed body, but it is NOT 'getting people out of wheelchairs'.
So before I comment any further, I will ask the CEO of CDRF to comment on this claim. If they are truly 'getting people out of wheelchairs', I'll eat my hat and kiss CDRF's CEO on the lips in Macy's window.
BlackBerry from DOCOMO