30 April 2018

Spinal Cord Injury Cure Community Survey - Part II

What’s stopping us? 2018SCICure Community Survey – Part II

Welcome to part II of the 2018SCI Cure Community Survey. In this next post I want to look at how SCI Cure Community members think about involvement in finding a cure for spinal cord injury.

I found some interesting information and also found a few interesting questions that I should have asked. Those I’ll get to in the end, but first, let’ shave a look.

On a scale of 1 to 10, with one being a strong NO and 10 being a strong YES, please rate the following
1-2
3-4
5-6
7-9
9-10
Total of
7 - 10
I would like to be more involved in finding a cure for SCI.
6
2
18
62
I would be willing to regularly volunteer in finding a cure for SCI.

9
6
16
26
32
58
If I liked an organization actively campaign for a cure for SCI, I would gladly donate funds.

7
6
20
22
35
57
If I liked an organization actively campaigning for a cure for SCI, I would participate in that group.

7
2
16
27
37
64
If I liked an organization actively campaign for a cure for SCI, I would pay a monthly subscription/due to that group

14
10
16
24
25
49

And the answer that gave me the most hope:

If you would like more information on how you can get involved in a cure for SCI, please leave your name and email address below.

About half of all respondents left me their email address.

Now, let’s talk about this a little.

First, I have to admit that those who would do a survey like this, are probably the first ones to raise their hands to cure paralysis, but I think we should take heart by this showing and think of ways to turn these online results into real activity.

For the meantime, I have invited those who left their email addresses to a simple web forum so that they can share their ideas for becoming active. I also know that this may not be the best first step as those who raised their hands want someone to tell them how they can be active. I guess I’ll have to try both ways.

So, after doing this survey, what questions do I think I missed.

My doubts about my questions comes from after looking at the answer to the below question.

Currently and/or in the past, do you feel that you have personally been involved with anything that may help lead to a cure for SCI? 44 people out of a total of 103, about 40% answered YES.

I think it can be summed up into one question, and please believe that this is not some kind of accusation and keep following me here.

Let’s re-examine some questions we’ve already looked at. This time, instead of looking at all the respondents, let’s just look at those who are on the positive side, those who picked a 7 to 10 response.

On a scale of 1 to 10, with one being a strong NO and 10 being a strong YES, please rate the following
Total responses
Total of
7 - 10
As a %
I would like to be more involved in finding a cure for SCI.
88
62
70
I would be willing to regularly volunteer in finding a cure for SCI.

89
58
65
If I liked an organization actively campaign for a cure for SCI, I would gladly donate funds.

90
57
63
If I liked an organization actively campaigning for a cure for SCI, I would participate in that group.

89
64
72
If I liked an organization actively campaign for a cure for SCI, I would pay a monthly subscription/due to that group

89
49
55

Therefore, comparing those who’ve done something in the past to help CURE versus those who want to do something to help cure, my questions would be this.

What’s stopping us?

You’ll notice I used “us” and not “you”.

Let me tell you wants stopping me and then you can comment.

Pain. Time. Belief in efficacy. Fear I don’t know enough.

Does that sound like you? Let me know and maybe we can keep each other’s faith and strength high enough to do something about it.

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