...Now, can they get us to walk the walk?
I have to admit that I was quite impressed by a recent announcement by the Rick Hansen Institute. Their new five year "strategic directions" plans seems just like what spinal cord injury cure activists have been campaigning for.
For now, I'll leave my judgement at "seems", but they sure have learned to talk the cure talk. Prior to this the Rick Hansen Foundation and Institute has sprinkled the "cure" word here and there but never seemed to have any kind of plan to cure spinal cord injury. It seems that this may have changed!
Not only do they seem committed to a cure for spinal cord injury, it looks like they also have a plan which entails spending for cure (along with care). They now talk about regeneration and even mention the word "chronic" spinal cord injury. "Chronic" means those of us currently living with the horrors of paralysis and they NOW talk about US.
I can't be 100% certain, but I don't believe that their old website ever talked about a commitment to cure chronic spinal cord injury. They've even set up a committee headed by Dr. Brian Kwon to deal with cure.
Another new buzzword(s) is "consumer engagement". Could this mean that RHI now wants our input?
We've spent two years asking the Rick Hansen Foundation and Institute questions about cure and now they seem like they're ready to answer.
I know that there are many cynics when it comes to the Rick Hansen group and cure, but I prefer to let my cynicism down and engage this new path with questions. You can see some of the questions we'll be raising in upcoming talks.
Let's see what one of the leading, world wide, SCI organisation is putting on the cure table before criticising. One of my "cure" comrades stated that they are doing all of this just to make us happy. My answer to this is that I'm glad they're finally considering our opinions, trying to "make us happy", and making cure a true centerpiece in their efforts.
Please have a look at the recent announcement including our questions. If you have any more questions you'd like to ask, please let me know.